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Our mission is to enhance the lives of people affected by Mowat-Wilson Syndrome

Family Support

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Raise Awareness

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Research

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A community of support for rare, special children and their families

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Research. Support. Hope.

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MWS PATIENT REGISTRY

The Mowat-Wilson Syndrome Patient Registry is here! We encourage all MWS families to share data about the syndrome. The more information we can provide, the better… Because we don’t know what’s possible!
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LATEST NEWS FROM THE MOWAT-WILSON SYNDROME FOUNDATION

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THANK YOU FOR ATTENDING THE 2017 INTERNATIONAL FAMILY CONFERENCE!

I LOVE SOMEONE RARE

Thank you to the MWS community for sharing your photos with us and helping us show the world what Mowat-Wilson Syndrome looks like.

CONNECT WITH THE MOWAT-WILSON SYNDROME FOUNDATION

Social networking has become one of the most popular ways to connect online. You can also keep up with the foundation by finding us on your favorite social networks.

  • Learn: Learn from other families with MWS, those who care about them and MWS experts on a wide range of topics.
  • Share: Sharing your story connects you to the community and gives strength and hope to others.
  • Connect: Join discussions and groups to connect with people like you, share your experiences and get support.

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Here he is, The most winningest chef, 4 time champ!! So damn proud of my brother for brining it home again and so incredibly honored and touched that he played for Zoe and the Mowat Wilson Syndrome Foundation!!! Zoe loves you, you have also won her heart!! Love you so much Adam #choppedgrandestchampion #coconutclubherewecome #mowatwilsonawareness #mowatwilson #chopped #foodnetwork www.mowat-wilson.org
Consider a donation on Giving Tuesday November 28th. www.mowat-wilson.org/support
Twin Day.. triplets!
An Ordinary Day - A beautiful photo documentation of kids and families affected by rare diseases. We are honored to have Jonathan, who has Mowat-Wilson Syndrome, featured in the book. A great holiday gift!
Thank you Paul Jacobi! #runformws

SUPPORT US

Take action! Donate!

The success of our mission depends on the generosity of our supporters. We depend on you, and, in return, we know that we owe it to you to demonstrate why a donation to the Mowat-Wilson Syndrome Foundation is a good investment. We are the only organization whose mission is to enhance the lives of people affected by Mowat-Wilson Syndrome by providing family support, raising awareness, and supporting research and education.

Because Mowat-Wilson Syndrome is so rare, each and every MWS patient, and everyone who cares about someone affected by MWS, is critical to our success. Your donation, no matter how large or small, will make a meaningful impact.

If you are ready to give, please consider these ways to donate. If you have questions or would like more information before donating, please feel free to contact us.

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