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Our mission is to enhance the lives of people affected by Mowat-Wilson Syndrome

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Raise Awareness

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Research

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A community of support for rare, special children and their families

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Research. Support. Hope.

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MWS PATIENT REGISTRY

The Mowat-Wilson Syndrome Patient Registry is here! We encourage all MWS families to share data about the syndrome. The more information we can provide, the better… Because we don’t know what’s possible!
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LATEST NEWS FROM THE MOWAT-WILSON SYNDROME FOUNDATION

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Thank you to the MWS community for sharing your photos with us and helping us show the world what Mowat-Wilson Syndrome looks like.

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Social networking has become one of the most popular ways to connect online. You can also keep up with the foundation by finding us on your favorite social networks.

  • Learn: Learn from other families with MWS, those who care about them and MWS experts on a wide range of topics.
  • Share: Sharing your story connects you to the community and gives strength and hope to others.
  • Connect: Join discussions and groups to connect with people like you, share your experiences and get support.

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Dear Families and Friends of the Mowat-Wilson Syndrome Community,
The 2017 Conference Agenda has been completed with 8 valuable  workshops and multiple general sessions speakers.
Our plated family dinner on Saturday night will entertain us with music and signing from our own community!!!
We are 10 days away from closing our early bird registration pricing!  As planners of this exciting event, we need to have an attendee count soon. 
So please make your conference registration and hotel reservation as soon as possible!!!! If you are having difficulty with payments, please visit our website for ideas on asking for help with expenses.  There have been multiple families that have reached out to various organizations and have been given help in paying registration fees. 
Although we are 3 months away from our event, we need to have a good grasp on all of our attendees as well as how many children will need childcare. 
This conference will be an amazing weekend for everyone involved----you won't want to miss it---but we have space limitations!  Email me  if you have any questions or concerns at susant@mowat-wilson.org.  Thank you!  Susan Triunfo, President
The Mowat-Wilson Syndrome Foundation
15 weeks #countdown #2017mwsconference
20 Families already registered for the #2017mwsconference
Please DO NOT forget to register today for the 2017 Mowat Wilson conference it's June 29th-July 1st.. registration is open!! www.mowat-Wilson.org #mowatwilson
Consider the Mowat-Wilson Syndrome Foundation for your end of year donation. www.mowat-wilson.org

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Take action! Donate!

The success of our mission depends on the generosity of our supporters. We depend on you, and, in return, we know that we owe it to you to demonstrate why a donation to the Mowat-Wilson Syndrome Foundation is a good investment. We are the only organization whose mission is to enhance the lives of people affected by Mowat-Wilson Syndrome by providing family support, raising awareness, and supporting research and education.

Because Mowat-Wilson Syndrome is so rare, each and every MWS patient, and everyone who cares about someone affected by MWS, is critical to our success. Your donation, no matter how large or small, will make a meaningful impact.

If you are ready to give, please consider these ways to donate. If you have questions or would like more information before donating, please feel free to contact us.

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