Conference Speakers & Workshops
While we are still working the details, here is a tentative list of speakers for the 2017 MWSF Family Conference.
SPEAKERS
Dr. David Mowat
Co-discoverer of Mowat-Wilson Syndrome
Dr. Merlin Butler
MWS Research Project at KUMC
Justine Niemczyk & Catharina Wagner
MWS Elimination Study
Dr. Margaret Adam
MWS Registry Update
Kathryn Lambertson
Genetic Alliance, MWS Registry
WORKSHOPS
Person-Centered Planning
Amy Hosa, mother of Gannet of “The Key of G.” documentary
Bowel Management
Dr. Belinda Dickie, Boston Children’s Hospital
Mobility Issues
Ginny Paleg, PT, PhD
Educational Goals for MWS
Cindy Doughtery, Educator
Augmentative/Alternative Communications
Kim Singleton Behavior Management ABA Therapist
Seizure Management
Dr. John Schreiber, Children’s National Hospital IEP and Advocacy Kim Mellethin
