2017 MWSF International Family Conference

Washington D.C. June 30 - July 1st, 2017

Conference Speakers & Workshops

While we are still working the details, here is a tentative list of speakers for the 2017 MWSF Family Conference.


Dr. David Mowat
Co-discoverer of Mowat-Wilson Syndrome

Dr. Merlin Butler
MWS Research Project at KUMC

Justine Niemczyk & Catharina Wagner
MWS Elimination Study

Dr. Margaret Adam
MWS Registry Update

Kathryn Lambertson
Genetic Alliance, MWS Registry


Person-Centered Planning
Amy Hosa, mother of Gannet of “The Key of G.” documentary

Bowel Management
Dr. Belinda Dickie, Boston Children’s Hospital

Mobility Issues
Ginny Paleg, PT, PhD

Educational Goals for MWS
Cindy Doughtery, Educator

Augmentative/Alternative Communications
Kim Singleton Behavior Management ABA Therapist

Seizure Management
Dr. John Schreiber, Children’s National Hospital IEP and Advocacy Kim Mellethin

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