2019 Rare Disease Day

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Hope. Research. Love.

RARE DISEASE DAY – FEBRUARY 28, 2019

About Rare Disease Day

Rare Disease Day is the international awareness-raising campaign for rare diseases. Since Rare Disease Day started in 2008, thousands of events have taken place throughout the world, reaching millions of people.

The theme for Rare Disease Day 2019 is ‘Bridging health and social care’. Focusing on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day.

Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better coordinate all aspects of care for people living with a rare disease.

Thank you for participating!

#ShowYourRare

Be part of the social media campaign to raise awareness of Mowat-Wilson Syndrome. Fill out the form below, send us your loved one’s photo and we will e-mail you the 2019 MWS RARE eCard. Show your rare. Use the hashtags #ShowYourRare, #MyRare or #RareDiseaseDay.

By sending your photo you are giving the MWSF the authorization to use  the photo on the Foundation’s website,  social channels, as well as printed materials. The email address provided will be added to the Foundation’s email list.

Send Your Photo

 

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