Support the MWS Foundation and Raise Awareness! Great Gifts for Families, Caregivers, Teachers and Therapists! The Mowat Wilson Syndrome Foundation is proud to announce the grand opening of the MWS Store featuring many options of products. Looking for a gift? Please support the Foundation by shopping at our store. Our initial inventory includes: T-shirts Polo […]
Set Up a Giving Tuesday Fundraiser We Can Do More Together! GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. Facebook has announced a $7M matching for donations received on Tuesday, December 3rd on a first come, first serve basis. You can help raising […]
Financial reports for the year 2018: Mowat-Wilson Syndrome Foundation Profit and Loss 2018 Mowat-Wilson Syndrome Foundation Balance Sheet 2018
SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]
Caregiver Survey: Mowat-Wilson Syndrome The Mowat-Wilson Syndrome Foundation has partnered with suAzio to conduct a survey of Mowat-Wilson Syndrome caregivers like yourself. The survey has been developed in close collaboration with the MWSF to ensure the resulting survey feedback will assist the Foundation to better serve the MWS community.
Epilepsy & Seizures in Mowat-Wilson Syndrome March 7, 2019 – 8:00 pm EST Speaker: John Schreiber, MD Overview of seizures and epilepsy and how these manifest in MWS, with particular attention to neurological consequences and management.
SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]
Recommendation for MWS Patients to Get Evaluated for Absent Spleen Recently, several reports have highlighted a rare finding in individuals with Mowat-Wilson syndrome (MWS), namely absent or missing spleen. The spleen is an organ that filters the blood and can help fight certain types of bacterial infections. The spleen is located in the left upper abdomen but […]
