2020 Rare Disease Day

Hope. Research. Love.


About Rare Disease Day

Rare Disease Day is the international awareness-raising campaign for rare diseases. Since Rare Disease Day started in 2008, thousands of events have taken place throughout the world, reaching millions of people.

The theme for Rare Disease Day 2020 is ‘We Are The 300 Million’. There are over 300 million people worldwide living with a rare disease. Together across borders, and across the 6000+ rare diseases we work towards more equitable access to diagnosis, treatment, care and social opportunity.

Our key message for Rare Disease Day 2020 is that:

  • Rare is many worldwide.
  • Rare is strong every day.
  • Rare is proud everywhere.

Thank you for participating!

Be part of the social media campaign to raise awareness of Mowat-Wilson Syndrome. Fill out the form below, send us your loved one’s photo and we will e-mail you the MWS RARE eCard. Show your rare. Use the hashtag #RareDiseaseDay.

By sending your photo you are giving the MWSF the authorization to use  the photo on the Foundation’s website,  social channels, as well as printed materials. The email address provided will be added to the Foundation’s email list.

Send Your Photo



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