2022 Rare Disease Day

Hope. Research. Love.

2022 RARE DISEASE DAY

SHOW YOUR RARE & FUNDRAISE!

Help Us Fund the MWS Biorepository

This year we are asking the families to set up a Facebook Fundraiser to help us meet our goal of US $7,000 towards the creation of a MWS Biorepository to collect and store MWS samples and make them available for researchers. All money raised will go 100% to this project.

THANK YOU FOR YOUR PARTICIPATION.

WE ARE NO LONGER PROVIDING THE FRAMES.

About Rare Disease Day

Rare Disease Day is the international awareness-raising campaign for rare diseases. Since Rare Disease Day started in 2008, thousands of events have taken place throughout the world, reaching millions of people.

Our key message for Rare Disease Day is that:

  • Rare is MANY worldwide.
  • Rare is STRONG every day.
  • Rare is PROUD everywhere.

Thank you for participating!

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