February 28th – 2023 Rare Disease Day

February 28th Show Your Rare and Fundraise! LEARN MORE  

Important MWS Research Seeks Volunteers

Children’s National Research on ESES in MWS and its Impact on Development The purpose of the research is to collect electroencephalogram (EEG) recordings, developmental assessments and information such as seizure history, treatment, imaging, and medical records from people with genetically-confirmed Mowat Wilson syndrome (MWS). We hope to gain a better understanding of the occurrence of […]

MWSF January 2023 Newsletter

Happy New Year! Our January 2023 newsletter is loaded with great news! Take a moment to read And enjoy!