We are weeks away from Giving Tuesday, November 28, 2023. It is the biggest day of the year for giving back! #Giving Tuesday. MWSF has a goal of raising $5,000 this year!
Through past donations, the Mowat Wilson Syndrome Foundation has been able to create tools and resources to help families cope with this disease and offer grants to researchers to further our knowledge of MWS and accelerate discoveries that support early diagnosis and treatment options. Our efforts continue to raise awareness of MWS, resulting in the diagnosis of many more patients who look to the Foundation for support, education, and connection.
Tools developed include the launch of the MWS Matrix Portal and Patient Registry. It is a customized health records portal for Mowat Wilson Syndrome (MWS) patients to help families, patients and caregivers easily capture, track, and share information related to medications, symptoms, activities, and electronic health records. The information collected through the registry will also support research to provide early diagnosis and treatment for MWS patients.
Please consider supporting our efforts through a Giving Tuesday Donation on November 28, 2023, by either clicking HERE or sending in your donation directly to: MWSF, Attn: Jeanette May, 26 S Henry St., Madison Wisconsin 53703.
We thank you for your support and wish you a wonderful holiday season!