Our January/February 2024 Newsletter is filled with great stories! Take a moment to read and enjoy!

Discover a wealth of compelling stories that are sure to captivate your interest and warm your heart. In this edition, we shine a spotlight on the significance of Rare Disease Day, inviting you to join us in raising awareness and understanding. Be part of the excitement by securing your spot at the upcoming 2024 International Family Conference – details on registration await you!

Meet our extraordinary Family of the Month and explore their inspiring journey, reminding us all of the strength within our community. Delve into the pages highlighting “Why Research Matters” and gain insights into the pivotal role research plays in transforming lives.