2025 Rare Disease Day – Tag A Friend
Expand Awareness for Rare Disease Day 2025
This February, in recognition of Rare Disease Day 2025, the Mowat-Wilson Syndrome Foundation (MWSF) invites you to Tag a Friend and help expand our community. Raising awareness starts with just one simple action—sharing MWS with someone new. Whether it’s a friend, family member, coworker, or neighbor, every new connection helps build a stronger and more informed community.
How Can You Tag a Friend?
Tagging a friend is easy and can be done in a way that feels most natural to you. You can:
- Tell someone in person about Mowat-Wilson Syndrome and why awareness matters.
- Encourage them to subscribe to our mailing list to stay informed about MWS and the Foundation’s mission. Signup here.
- Tag them in one of our social media posts to introduce them to MWSF and encourage them to follow us for updates and stories from our community.
Why Awareness Matters
Many people have never heard of Mowat-Wilson Syndrome, but awareness is the key to fostering understanding, support, and advocacy. By sharing our message with just one new person, you’re helping to grow our community and lay the foundation for increased research, improved resources, and greater public recognition of MWS. The more people who know about MWS, the stronger our collective voice becomes in advancing care, support, and opportunities for those affected.
Your voice is powerful—help us make an impact by tagging a friend today!
What is Rare Disease Day?
Rare Disease Day, observed annually, is a global initiative dedicated to raising awareness for the over 300 million people worldwide living with a rare disease. This day highlights the challenges faced by individuals and families affected by rare conditions, including delayed diagnoses, limited treatment options, and the need for greater research and support. Advocacy efforts on Rare Disease Day help drive policy changes, increase funding for research, and foster a stronger community for those navigating life with a rare disease.
For families seeking information, support, and other ways to get involved, the Rare Disease Day website offers a wealth of resources, including educational materials, advocacy toolkits, and stories from those affected.
By spreading awareness and connecting with the rare disease community, we can work toward better care, treatments, and understanding for all.
