Board of Directors
We are a team of dedicated parents, grandparents and advocates, ready to do what ever it takes to support the MWS community and their families.
Grandmother of Addison.
Karen is the grandmother of four beautiful children, including Addison, a loving little girl who was diagnosed with Mowat-Wilson Syndrome in 2013. Karen is a retired RN with a work history including labor and delivery, newborn nursery and public health. She holds a Master’s Degree in Nursing from Oral Roberts University with a concentration in Nursing of Children. Her undergraduate work includes a BSN from the University of Tulsa and a BS in Chemistry from Mary Washington College. Karen’s desire is to support families of children with Mowat-Wilson Syndrome and increase awareness among health care providers to facilitate earlier diagnosis and comprehensive treatment.
Mother of Zoe.
I am the Mother of 4 and 1/2 year old Zoe, who was diagnosed with Mowat-Wilson Syndrome when she was 21 months old. Zoe is an amazing, determined little girl, and my husband, Mark, and I are extremely proud to be her parents. She has an older sister Hayley, age 7, who she adores and the feeling is mutual. For the last 12 years I have been a professional Hairstylist, but my main passion and focus is being a stay-at-home mom. As a volunteer for the Jewish Federation of Greater Hartford, I am one of the Co-Founders of The Pearl Society, an organization focusing on Jewish women who want to make a difference in Greater Hartford, Israel and in the Jewish Communities worldwide.