Entries by 4Foundation

2022 Run For MWS – Register Today!

Run For MWS Annual Awareness & Virtual Fundraising Event Hello MWS Families and Friends! Join us on our Annual Awareness & Virtual Fundraiser event – Run for MWS!  Here are the steps: Decide on the event type – single runner, a group run, a race in your town, a fun run around the block, or […]

Mowat-Wilson Syndrome Foundation Awards Over $143K in Research Grants

SELECTED PROJECTS WILL BENEFIT INDIVIDUALS WITH MOWAT-WILSON SYNDROME Las Vegas, September 1, 2022 — The Mowat-Wilson Syndrome Foundation (MWSF) announced today that it has awarded over $143,000 to selected research projects through the Maci Whisner Research Grant program. The awards will further the scientific understanding of Mowat-Wilson Syndrome (MWS) while enhancing and strengthening the lives […]

MWS Family of the Month – Jethro’s Story

I knew the moment I conceived Jethro, at that moment and the following day. A few weeks later this was confirmed as I had to sit down during a morning yoga class otherwise I would have fainted. I was working part-time at a college of Natural Therapies and had been studying Yoga Teacher Training for […]

2021 Run For MWS – Register Today!

Run For MWS Virtual Fundraiser & Awareness We would like to inspire families around the world to run for MWS as a form of raising awareness and fundraising for the MWS Foundation. Here are the steps: Decide on the event type – single runner, a group run, a race in your town… Pick a date […]

New #NeverGiveUpMug Now Available at the MWSF Store

The New MWS Mugs Are Here! #nevergiveupmug   Start your day with a cup of tea or coffee and support the MWS Foundation. Our mugs are inspired by the #nevergiveup attitude of MWS children and their families. For only $10 each, a set of mugs makes a very special gift for families, caregivers, office staff, […]

ABLE Accounts For MWS Individuals

HAVE YOU HEARD ABOUT “ABLE” ACCOUNTS? Forty-one states in the United States are now offering ABLE accounts which are tax-advantaged savings programs for individuals with disabilities. These accounts are designed to preserve eligibility for SSI and Medicaid. This is particularly important for individuals with disabilities who have legally become adults and must assure that their […]

New T-shirts at the MWS Store

New MWS Tees Just Dropped Raise Awareness and Look Cool   The new t-shirts have just arrived in our online store. They are available in youth and adult sizes at $15 each. Let’s raise awareness about Mowat-Wilson Syndrome and look cool! Shop Now

Mowat-Wilson Syndrome Foundation Announces New Customized Patient Records Platform

New Patient Portal for MWS Community Customized Health Records Platform   The Mowat-Wilson Syndrome Foundation announced today that it has entered into a partnership with Across Healthcare to use its Matrix rare disease platform to create a customized health records portal for Mowat-Wilson Syndrome (MWS) patients. Matrix was designed by Across Healthcare to help patients […]