Entries by 4Foundation

Lobs of Love Fundraiser

LOBS OF LOVE EVENT AT MILFORD INDOOR TENNIS TO BENEFIT THE MOWAT-WILSON SYNDROME FOUNDATION Milford, CT – A fun evening of tennis and prizes is on tap for September 29 at Milford Indoor Tennis (580 Bridgeport Ave.). The Lobs of Love Event will benefit the Mowat-Wilson Syndrome Foundation. Mowat-Wilson Syndrome is a rare but extremely serious […]

2017 Financial Reports

Financial reports for the year of 2017: 2017 Annual Report Mowat-Wilson Syndrome Foundation Profit and Loss 2017 Mowat-Wilson Syndrome Foundation Balance Sheet 2017      

MWS Regional Events 2018

Regional Events for 2018 Three great regional events are in place for 2018 so far. These are informal events where the families can get together in a relaxed and fun settings to exchange experiences and get to spend some time together.

New Survey to Capture MWS Growth Data

As of March 1, 2018, the Mowat-Wilson Syndrome registry has over 133 participants involved at varying levels with the three current surveys. With the launch of the Growth Data survey we hope to be able to provide the valuable information necessary for the development of Mowat-Wilson Syndrome specific growth charts. Here are some comments from Dr. […]

Research Article: Phenotype and Genotype of 87 Patients with MWS and Recommendations for Care

This study , published by the American College of Medical Genetics and Genomics, analyses clinical data for 87 patients with a molecularly confirmed diagnosis of MWS, including 62 previously reported patients and 25 unpublished cases, and compared them with patients previously reported by other authors. The data  was obtained through collaborations involving clinicians from various countries. Such […]

Mowat-Wilson Syndrome Foundation Awarded $10K, Food Network Chopped, Grand Holiday Prize

The Mowat-Wilson Syndrome Foundation was the grand winner on Food Network’s Chopped on its Grand Holiday episode aired on December 5th, 2017. Chef Adam Greenberg, a three-time winner on Chopped, won the battle over three other undefeated competitors. What a great show! Adam chose the MWS Foundation to receive the $10,000 grand prize. Adam’s sister, Katie Fineberg, is a director […]