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2020 Giving Tuesday – December 1st

Set Up a Giving Tuesday Fundraiser Fundraise From Home It has been a hectic year for all of us but despite the challenges we are thankful for many things we accomplished, including the first virtual MWS Conference. We would like to thank you for attending it live or watching the videos on YouTube. We hope […]

2020 Mowat-Wilson Syndrome Virtual Conference

Virtual Conference Open to the Entire World OCT 10 | OCT 24 | NOV 7 | NOV 21 Our Houston conference may have been cancelled but we are happy to announce that we are presenting the speakers on a virtual platform where we can still see all families and interact while we listen to the […]

Mowat-Wilson Syndrome Growth Charts

Mowat-Wilson Syndrome Growth Charts Male & Female | Height | Weight | BMI | Head Circumference Mowat–Wilson syndrome (MWS; OMIM #235730) is a genetic condition caused by heterozygous mutations or deletions of the ZEB2 gene. It is characterized by moderate-severe intellectual disability, epilepsy, Hirschsprung disease and multiple organ malformations of which congenital heart defects and […]

Run & Fundraise For MWS – Sep 7th – Nov 1st

Run & Fundraise for the MWSF! Virtual Race | #RunforMWS | #OWM2020 | #StrongerTogether The Mowat-Wilson Syndrome Foundation has partnered with One World Strong to inspire runners of all ages and abilities to run anywhere, any distance on a date between September 7th and November 1st 2020. It’s a virtual race open to everyone! Are […]

#MoveYourBodyforMWS – Fun Fitness Challenge

Welcome to the inaugural Mowat-Wilson Syndrome Foundation Fitness Challenge! Shift your mindset from negative to positive in this unique time we’re living through together. Join us on a a 5-week challenge to move your body every day with 15 minutes of a fun physical activity of your choice. Please keep in mind the needs & […]

Impact of COVID-19 in MWS

Guidelines and Recommendations for Families Affected by MWS The Mowat-Wilson Foundation has received a number of questions about how coronavirus disease 2019 (COVID-19) may affect individuals with MWS. We hope that you and your family are staying safe and healthy. During this time, the best source to turn to for information about your family member […]

Meet the MWSF Community Advisory Board

MWS Community Advisory Board Established. Members Selected. The MWS Foundation recently established our first Community Advisory Board (CAB). The idea behind the CAB is to put in place a more efficient process to gain input from the MWS community. We have selected 14 members (10 U.S. and 4 International) from the MWS community to begin […]

Conference Cancellation

COVID-19 Update The MWSF board has decided not to delay the inevitable. The 2020 International Conference is officially cancelled. As upsetting as this is, we feel that we must act now to allow everyone to move ahead with the necessary cancellation of travel plans, etc. Registrations will be refunded as soon as possible.   Please bear […]

MWSF Store Now Open!

Support the MWS Foundation and Raise Awareness! Great Gifts for Families, Caregivers, Teachers and Therapists! The Mowat Wilson Syndrome Foundation is proud to announce the grand opening of the MWS Store featuring many options of products. Looking for a gift? Please support the Foundation by shopping at our store. Our initial inventory includes: T-shirts Polo […]