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2021 Run For MWS – Register Today!

Run For MWS Virtual Fundraiser & Awareness We would like to inspire families around the world to run for MWS as a form of raising awareness and fundraising for the MWS Foundation. Here are the steps: Decide on the event type – single runner, a group run, a race in your town… Pick a date […]

New #NeverGiveUpMug Now Available at the MWSF Store

The New MWS Mugs Are Here! #nevergiveupmug   Start your day with a cup of tea or coffee and support the MWS Foundation. Our mugs are inspired by the #nevergiveup attitude of MWS children and their families. For only $10 each, a set of mugs makes a very special gift for families, caregivers, office staff, […]

ABLE Accounts For MWS Individuals

HAVE YOU HEARD ABOUT “ABLE” ACCOUNTS? Forty-one states in the United States are now offering ABLE accounts which are tax-advantaged savings programs for individuals with disabilities. These accounts are designed to preserve eligibility for SSI and Medicaid. This is particularly important for individuals with disabilities who have legally become adults and must assure that their […]

New T-shirts at the MWS Store

New MWS Tees Just Dropped Raise Awareness and Look Cool   The new t-shirts have just arrived in our online store. They are available in youth and adult sizes at $15 each. Let’s raise awareness about Mowat-Wilson Syndrome and look cool! Shop Now

Mowat-Wilson Syndrome Foundation Announces New Customized Patient Records Platform

New Patient Portal for MWS Community Customized Health Records Platform   The Mowat-Wilson Syndrome Foundation announced today that it has entered into a partnership with Across Healthcare to use its Matrix rare disease platform to create a customized health records portal for Mowat-Wilson Syndrome (MWS) patients. Matrix was designed by Across Healthcare to help patients […]

2020 Giving Tuesday – December 1st

Set Up a Giving Tuesday Fundraiser Fundraise From Home It has been a hectic year for all of us but despite the challenges we are thankful for many things we accomplished, including the first virtual MWS Conference. We would like to thank you for attending it live or watching the videos on YouTube. We hope […]

2020 Mowat-Wilson Syndrome Virtual Conference

Virtual Conference Open to the Entire World OCT 10 | OCT 24 | NOV 7 | NOV 21 Our Houston conference may have been cancelled but we are happy to announce that we are presenting the speakers on a virtual platform where we can still see all families and interact while we listen to the […]

Mowat-Wilson Syndrome Growth Charts

Mowat-Wilson Syndrome Growth Charts Male & Female | Height | Weight | BMI | Head Circumference Mowat–Wilson syndrome (MWS; OMIM #235730) is a genetic condition caused by heterozygous mutations or deletions of the ZEB2 gene. It is characterized by moderate-severe intellectual disability, epilepsy, Hirschsprung disease and multiple organ malformations of which congenital heart defects and […]

Run & Fundraise For MWS – Sep 7th – Nov 1st

Run & Fundraise for the MWSF! Virtual Race | #RunforMWS | #OWM2020 | #StrongerTogether The Mowat-Wilson Syndrome Foundation has partnered with One World Strong to inspire runners of all ages and abilities to run anywhere, any distance on a date between September 7th and November 1st 2020. It’s a virtual race open to everyone! Are […]