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Caregiving Corner

Released January 1, 2022 The MWSF Community Advisory Board would like to share their stories about obtaining a genetic diagnosis (all names have been changed to protect their anonymity): Danielle’s story: Early on, my daughter Susan had many different diagnoses because MWS was not as recognized by geneticists back then. Having a knowledgeable Geneticist is […]

Life Hacks for MWS families

Released January 1, 2022   Use a pill box – you can find one that lasts up to 4 weeks with AM and PM slots, so you can organize all the medications for a whole month.     These tips can be helpful for colostomy care. Please note that we do not provide medical advice […]

Life Hacks for MWS families

Released December 1, 2021 Double-wrap your child’s bed If night time accidents tend to happen in your household, the, this hack is for you. Put a mattress protector and then a sheet over it. Then, put on another mattress protector and sheet. If your child has an accident, you can simply peel off one layer […]

Caregiving Corner

Released December 1, 2021 The MWSF Community Advisory Board would like to share some information about connecting to resources: Since 2006, the Case for Inclusion has been a leading source for data and policy recommendations regarding the effectiveness of state Medicaid programs in serving people with intellectual and developmental disabilities (IDD) and their families.   This […]

Life Hacks for MWS families

Released November 1, 2021 The Child Mind Institute has a list of helpful life hacks that talks about everything from putting clothes on to toothpaste flavors: https://childmind.org/article/parenting-hacks-for-special-needs-kids/ Target now sells clothing for children with special needs: https://www.disabilityscoop.com/2017/08/17/target-clothing-special-needs/24042/ https://www.target.com/c/kids-adaptive-clothing/-/N-1laue Inclusive parenting talks about the importance of routines: https://positivespecialneedsparenting.com/5-life-hacks-for-special-needs-parents/

Caregiving Corner

Released November 1, 2021 The MWSF Community Advisory Board would like to share some information about what MWS families can expect after a diagnosis The decision to test children with MWS for COVID-19 is a difficult decision, and there are many factors to take into consideration. It is always best to ask one of your […]

New Donor Levels

New Donor Levels We would like to introduce our new levels of giving Everyone that joins our Sustaining Seas monthly giving program during our 2021 Giving Day Fundraiser will receive a special prize in the mail. They can also enter to win a $50 Amazon gift card. We will share more about this opportunity during […]

Save the Date for our 2021 Giving Day Fundraiser on Tuesday, November 30

GivingTuesday is a global movement designed unleash the power of radical generosity. GivingTuesday was created in 2012 as a simple idea: a day that encourages people to do good. Since then, it has grown into a year-round global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity. Join the movement […]