Released January 1, 2022 The MWSF Community Advisory Board would like to share their stories about obtaining a genetic diagnosis (all names have been changed to protect their anonymity): Danielle’s story: Early on, my daughter Susan had many different diagnoses because MWS was not as recognized by geneticists back then. Having a knowledgeable Geneticist is […]
Author Archive for: MarciaSmith
About Marcia Smith
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Meanwhile lets just say that we are proud Marcia Smith contributed a whooping 34 entries.
Released January 1, 2022 Use a pill box – you can find one that lasts up to 4 weeks with AM and PM slots, so you can organize all the medications for a whole month. These tips can be helpful for colostomy care. Please note that we do not provide medical advice […]
Released December 1, 2021 Double-wrap your child’s bed If night time accidents tend to happen in your household, the, this hack is for you. Put a mattress protector and then a sheet over it. Then, put on another mattress protector and sheet. If your child has an accident, you can simply peel off one layer […]
Released December 1, 2021 The MWSF Community Advisory Board would like to share some information about connecting to resources: Since 2006, the Case for Inclusion has been a leading source for data and policy recommendations regarding the effectiveness of state Medicaid programs in serving people with intellectual and developmental disabilities (IDD) and their families. This […]
Released November 1, 2021 The Child Mind Institute has a list of helpful life hacks that talks about everything from putting clothes on to toothpaste flavors: https://childmind.org/article/parenting-hacks-for-special-needs-kids/ Target now sells clothing for children with special needs: https://www.disabilityscoop.com/2017/08/17/target-clothing-special-needs/24042/ https://www.target.com/c/kids-adaptive-clothing/-/N-1laue Inclusive parenting talks about the importance of routines: https://positivespecialneedsparenting.com/5-life-hacks-for-special-needs-parents/
Released November 1, 2021 The MWSF Community Advisory Board would like to share some information about what MWS families can expect after a diagnosis The decision to test children with MWS for COVID-19 is a difficult decision, and there are many factors to take into consideration. It is always best to ask one of your […]
New Donor Levels We would like to introduce our new levels of giving Everyone that joins our Sustaining Seas monthly giving program during our 2021 Giving Day Fundraiser will receive a special prize in the mail. They can also enter to win a $50 Amazon gift card. We will share more about this opportunity during […]
GivingTuesday is a global movement designed unleash the power of radical generosity. GivingTuesday was created in 2012 as a simple idea: a day that encourages people to do good. Since then, it has grown into a year-round global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity. Join the movement […]