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Life Hacks for MWS families

Released May 1, 2022 Take the time to regularly check all the fitting and condition of all equipment that your child uses. Some get old with wear or may stop fitting as well as your child grows. There is a Facebook Group that lists handicap vans that are for sale Look for Facebook Groups for […]

Caregiving Corner

Released May 1, 2022 The MWSF Community Advisory Board would like to share some tips and resources for caregivers: Mobility and Stability  A stander can be used to help children stand – this type of stand helps children build up their leg muscles Gait trainers are also very helpful Rifton also sells bicycles Hippotherapy and […]

Meet the Researcher – Zoom Webinar Series

Join us on Thursday, April 21, 2022 at 6pm Eastern time as we host researcher, Dr. Rebekah Charney. This event has been postponed due to illness – stay posted for updates on the new date/time. Dr. Charney is a developmental and stem cell biologist currently working as a postdoctoral research fellow at the University of […]

Life Hacks for MWS families

Released April 1, 2022 Tips for the Bathroom In the bathroom, put a basket of toys on the floor – if your child bends over, it helps them use the bathroom Give your child some water to drink in the bathroom to help them need to urinate Use a spray bottle with warm water or […]

Caregiving Corner

Released April 1, 2022 The MWSF Community Advisory Board would like to share some tips and resources for caregivers: Communication  Nonverbal does NOT mean that your child cannot communicate and that they don’t understand – you have to find a way to give them that communication – and there are many avenues and different ways […]

Life Hacks for MWS families

Released March 1, 2022 Travel Tips Take a travel bag with you on trips. Safeplace bedding.com provides safe solutions so your child does not fall off of a bed. You can strap this on to any size of mattress even air mattresses. The mission of Safeplace Bedding is to give the WHOLE family the joy […]

Caregiving Corner

Released March 1, 2022 The MWSF Community Advisory Board would like to share some tips and resources for caregivers: Counseling can help We go through rough phases when our children are in the hospital – we don’t realize how traumatic it can be on our lives and physical health. Sometimes you don’t really realize how […]