Run For MWS Annual Awareness & Virtual Fundraising Event Hello MWS Families and Friends! Join us on our Annual Awareness & Virtual Fundraiser event – Run for MWS! Here are the steps: Decide on the event type – single runner, a group run, a race in your town, a fun run around the block, or […]
Join us on Thursday, April 21, 2022 at 6pm Eastern time as we host researcher, Dr. Rebekah Charney. This event has been postponed due to illness – stay posted for updates on the new date/time. Dr. Charney is a developmental and stem cell biologist currently working as a postdoctoral research fellow at the University of […]
GivingTuesday is a global movement designed unleash the power of radical generosity. GivingTuesday was created in 2012 as a simple idea: a day that encourages people to do good. Since then, it has grown into a year-round global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity. Join the movement […]
Join us on Thursday, October 7th, 2021 at 11 am Eastern time as we host researcher, Sumantra Chatterjee, a Research Assistant Professor at the Centre for Human Genetics and Genomics in NYU Grossman School of Medicine, New York. Sumantra has trained both as a developmental biologist and a human geneticist studying complex congenital diseases. His work […]
Run For MWS Virtual Fundraiser & Awareness We would like to inspire families around the world to run for MWS as a form of raising awareness and fundraising for the MWS Foundation. Here are the steps: Decide on the event type – single runner, a group run, a race in your town… Pick a date […]
Virtual Conference Open to the Entire World OCT 10 | OCT 24 | NOV 7 | NOV 21 Our Houston conference may have been cancelled but we are happy to announce that we are presenting the speakers on a virtual platform where we can still see all families and interact while we listen to the […]
SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]
Epilepsy & Seizures in Mowat-Wilson Syndrome March 7, 2019 – 8:00 pm EST Speaker: John Schreiber, MD Overview of seizures and epilepsy and how these manifest in MWS, with particular attention to neurological consequences and management.
SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]
2020 MWS International Family Conference June 25-27, 2020 – Houston, TX The MWS Foundation will host the 3rd International Family Conference on June 25-27, 2020 in Houston, Texas.
