Meet the Researcher – Zoom Webinar Series

Join us on Thursday, October 7th, 2021 at 11 am Eastern time as we host researcher, Sumantra Chatterjee, a Research Assistant Professor at the Centre for Human Genetics and Genomics in NYU Grossman School of Medicine, New York. Sumantra has trained both as a developmental biologist and a human geneticist studying complex congenital diseases. His work on Hirschsprung disease uncovered how multiple genes and mutations are interconnected, which helped to explain the severity of the disease observed in different patients and help classify patients better.

 

You can register for this FREE event here

During the Zoom meeting, Dr. Chatterjee will provide a brief overview of this research and what it means for MWS patients and families. We will also have a question/answer period for anyone with specific questions.

2021 Run For MWS – Register Today!

Run For MWS

Virtual Fundraiser & Awareness

We would like to inspire families around the world to run for MWS as a form of raising awareness and fundraising for the MWS Foundation. Here are the steps:

  • Decide on the event type – single runner, a group run, a race in your town…
  • Pick a date during the month of October
  • Run any distance
  • Run anywhere
  • Fundraise – Facebook fundraisers are the easiest!

 

2020 Mowat-Wilson Syndrome Virtual Conference

Virtual Conference Open to the Entire World

OCT 10 | OCT 24 | NOV 7 | NOV 21

Our Houston conference may have been cancelled but we are happy to announce that we are presenting the speakers on a virtual platform where we can still see all families and interact while we listen to the latest studies and research related to Mowat-Wilson Syndrome.

To accomodate the busy life of our families we carefully planned four two-hour sessions on Saturdays.

Simultaneous interpretation/translation to Spanish, French, Portuguese, Italian and German during the live event. The conference will be recorded in English and released on YouTube later.

2019 MWS Regional Events

SIGN UP FOR AN EVENT NEAR YOU!

One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all regions in North America. Please contact us if you are interested in hosting  a family regional event.
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Webinar: Epilepsy & Seizures – Watch Now!

Epilepsy & Seizures in Mowat-Wilson Syndrome

March 7, 2019 – 8:00 pm EST

Speaker: John Schreiber, MD

Overview of seizures and epilepsy and how these manifest in MWS, with particular attention to neurological consequences and management. Read more

2019 MWS Regional Events

SIGN UP FOR AN EVENT NEAR YOU!

One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all regions in North America. Please contact us if you are interested in hosting  a family regional event.
Read more

MWS Foundation Announces 2020 Family Conference

2020 MWS International Family Conference

June 25-27, 2020 – Houston, TX

The MWS Foundation will host the 3rd International Family Conference on June 25-27, 2020 in Houston, Texas.
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Lobs of Love Fundraiser

LOBS OF LOVE EVENT AT MILFORD INDOOR TENNIS TO BENEFIT THE MOWAT-WILSON SYNDROME FOUNDATION

Milford, CT – A fun evening of tennis and prizes is on tap for September 29 at Milford Indoor Tennis (580 Bridgeport Ave.). The Lobs of Love Event will benefit the Mowat-Wilson Syndrome Foundation.

Mowat-Wilson Syndrome is a rare but extremely serious condition found in many countries and across ethnic groups. In Connecticut, five children – two of whom live in Milford – are known to be affected by the disorder. Experts estimate that hundreds of U.S. children are affected by Mowat-Wilson. The Foundation is raising funds to hold a medical conference on the syndrome in 2020. Significant signs of the syndrome include distinctive facial features, intellectual disability, delayed development and other birth defects.

Lobs of Love attendees will enjoy a fun-filled evening featuring round robin mixed doubles and serving competitions. A silent auction and raffles are included, as well as appetizers and drinks. Event organizers are seeking donations of goods or services as well as financial contributions.

Current Platinum Sponsors include: Milford Indoor Tennis, The Keeney Manufacturing Company, Rocco Property Management, Pyramid Real Estate Group and Fairfield County Bank. For sponsorships, donations, or additional information, please contact Laura Chrysostomo at laurac@mowat-wilson.org

LobsforLove-flyer

2018 MWS Regional Events

2018 Regional Events

The Foundation hosted three great regional events in 2018. Regional events are informal events where the families get together in a relaxed and fun setting to exchange experiences and get to spend some time together.
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1964.. The Tribute Concert to Benefit the Mowat-Wilson Syndrome Foundation

All MWS families invited to a great night of music, friends and fun!

1964-theTribute-mws

The Mowat-Wilson Syndrome Foundation cordially invites friends, donors and anyone who loves good music to its fundraising concert to take place in Barre, VT on May 5th, 2018. Read more