Meet the Researcher – Zoom Webinar Series

Join us on Thursday, April 21, 2022 at 6pm Eastern time as we host researcher, Dr. Rebekah Charney.

This event has been postponed due to illness – stay posted for updates on the new date/time.

Dr. Charney is a developmental and stem cell biologist currently working as a postdoctoral research fellow at the University of California Riverside. Dr. Charney’s research focuses on the formation of cell types during early development and how changes in these processes can lead to birth defects. Her work makes use of human pluripotent stem cells to understand the formation and differentiation of neural crest cells – an embryonic stem cell population that contributes to a wide range of cell types throughout the human body. Dr. Charney received her Ph.D. from the University of California Irvine in 2016. She is the recipient of multiple early career awards from the National Institutes of Health, including a Ruth L. Kirschstein Individual Postdoctoral National Research Service Award and a Pathway to Independence Award, and was the recipient of a 2015 K. Patricia Cross Future Leaders award from the Association of American Colleges & Universities.

Watch all videos from the “Meet the Reasearcher” Series

Save the Date for our 2021 Giving Day Fundraiser on Tuesday, November 30

GivingTuesday is a global movement designed unleash the power of radical generosity. GivingTuesday was created in 2012 as a simple idea: a day that encourages people to do good. Since then, it has grown into a year-round global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity.

Join the movement and give!

Can’t Wait? Donate now

Meet the Researcher – Zoom Webinar Series

Join us on Thursday, October 7th, 2021 at 11 am Eastern time as we host researcher, Sumantra Chatterjee, a Research Assistant Professor at the Centre for Human Genetics and Genomics in NYU Grossman School of Medicine, New York. Sumantra has trained both as a developmental biologist and a human geneticist studying complex congenital diseases. His work on Hirschsprung disease uncovered how multiple genes and mutations are interconnected, which helped to explain the severity of the disease observed in different patients and help classify patients better.

Dr. Chatterjee will provide a brief overview of this research and what it means for MWS patients and families. We will also have a question/answer period for anyone with specific questions.

Watch all videos from the “Meet the Reasearcher” Series

2021 Run For MWS – Register Today!

Run For MWS

Virtual Fundraiser & Awareness

We would like to inspire families around the world to run for MWS as a form of raising awareness and fundraising for the MWS Foundation. Here are the steps:

  • Decide on the event type – single runner, a group run, a race in your town…
  • Pick a date during the month of October
  • Run any distance
  • Run anywhere
  • Fundraise – Facebook fundraisers are the easiest!
Information & Registration

 

2020 Mowat-Wilson Syndrome Virtual Conference

Virtual Conference Open to the Entire World

OCT 10 | OCT 24 | NOV 7 | NOV 21

Our Houston conference may have been cancelled but we are happy to announce that we are presenting the speakers on a virtual platform where we can still see all families and interact while we listen to the latest studies and research related to Mowat-Wilson Syndrome.

To accomodate the busy life of our families we carefully planned four two-hour sessions on Saturdays.

Simultaneous interpretation/translation to Spanish, French, Portuguese, Italian and German during the live event. The conference will be recorded in English and released on YouTube later.

2019 MWS Regional Events

SIGN UP FOR AN EVENT NEAR YOU!

One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all regions in North America. Please contact us if you are interested in hosting  a family regional event.
Read more

Webinar: Epilepsy & Seizures – Watch Now!

Epilepsy & Seizures in Mowat-Wilson Syndrome

March 7, 2019 – 8:00 pm EST

Speaker: John Schreiber, MD

Overview of seizures and epilepsy and how these manifest in MWS, with particular attention to neurological consequences and management. Read more

2019 MWS Regional Events

SIGN UP FOR AN EVENT NEAR YOU!

One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all regions in North America. Please contact us if you are interested in hosting  a family regional event.
Read more

MWS Foundation Announces 2020 Family Conference

2020 MWS International Family Conference

June 25-27, 2020 – Houston, TX

The MWS Foundation will host the 3rd International Family Conference on June 25-27, 2020 in Houston, Texas.
Read more

Lobs of Love Fundraiser

LOBS OF LOVE EVENT AT MILFORD INDOOR TENNIS TO BENEFIT THE MOWAT-WILSON SYNDROME FOUNDATION

Milford, CT – A fun evening of tennis and prizes is on tap for September 29 at Milford Indoor Tennis (580 Bridgeport Ave.). The Lobs of Love Event will benefit the Mowat-Wilson Syndrome Foundation.

Mowat-Wilson Syndrome is a rare but extremely serious condition found in many countries and across ethnic groups. In Connecticut, five children – two of whom live in Milford – are known to be affected by the disorder. Experts estimate that hundreds of U.S. children are affected by Mowat-Wilson. The Foundation is raising funds to hold a medical conference on the syndrome in 2020. Significant signs of the syndrome include distinctive facial features, intellectual disability, delayed development and other birth defects.

Lobs of Love attendees will enjoy a fun-filled evening featuring round robin mixed doubles and serving competitions. A silent auction and raffles are included, as well as appetizers and drinks. Event organizers are seeking donations of goods or services as well as financial contributions.

Current Platinum Sponsors include: Milford Indoor Tennis, The Keeney Manufacturing Company, Rocco Property Management, Pyramid Real Estate Group and Fairfield County Bank. For sponsorships, donations, or additional information, please contact Laura Chrysostomo at laurac@mowat-wilson.org

Learn More & Register

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