Lobs of Love Fundraiser

LOBS OF LOVE EVENT AT MILFORD INDOOR TENNIS TO BENEFIT THE MOWAT-WILSON SYNDROME FOUNDATION Milford, CT – A fun evening of tennis and prizes is on tap for September 29 at Milford Indoor Tennis (580 Bridgeport Ave.). The Lobs of Love Event will benefit the Mowat-Wilson Syndrome Foundation. Mowat-Wilson Syndrome is a rare but extremely serious […]

2018 MWS Regional Events

2018 Regional Events The Foundation hosted three great regional events in 2018. Regional events are informal events where the families get together in a relaxed and fun setting to exchange experiences and get to spend some time together.

1964.. The Tribute Concert to Benefit the Mowat-Wilson Syndrome Foundation

All MWS families invited to a great night of music, friends and fun! The Mowat-Wilson Syndrome Foundation cordially invites friends, donors and anyone who loves good music to its fundraising concert to take place in Barre, VT on May 5th, 2018.

2017 Conference Workshops Now Available on YouTube

We had eight great workshops at the 2017 Conference in Washington DC. Here are the slides and the audios.Feel free to share!

2017 International Family Conference Feedback Survey

Thank you to everyone who completed the Foundation survey to provide feedback for our 2017 conference in Washington, DC. Over half of the attending families responded with details of what they liked and what could be done better. We will keep all of your statements in mind as we prepare for future events. We asked […]

2017 International Family Conference

Jun 29 to July 01, 2017 – Washington D.C. Three days filled with lectures, workshops, Q&A sessions and activities for parents, individuals with Mowat-Wilson Syndrome and siblings. Guest speakers include Dr. David Mowat and Dr. Margaret Wilson among many other specialists that will speak on topics that affect most families like: Bowel Management, Mobility, Adaptive […]

2016 Seattle Medical Forum

October 15, 2016 – Seattle, WA The Medical Forum will be an informative program for families and medical students. The morning program will include updates from the doctors on the various studies that are being conducted on Mowat-Wilson Syndrome. Doctors Wilson and Adam will conduct a clinic in the afternoon for the medical students in […]

2016 Atlanta Family Pool Party & BBQ

August 20, 2016 – Atlanta, GA 1:00 pm – 6:00 pm Location Al & Susan Triunfo’s place 901 Dogwood Trail, Tyrone, GA 30290 Join us for a fun filled day! Swimming pool with basketball hoop, putting green, corn hole, bocce ball and other games. BBQ served around 4 p.m. Hamburgers, hot dogs, sides & fixins! […]

2016 Annual Family Beach Day – CT

August 21, 2016 – Camp Harkness – Waterford, CT 10:30 am – 3:00 pm The Mowat-Wilson Family Beach Day is an informal and relaxing day when families gather together to enjoy themselves and exchange experiences. Families must bring their own beach apparatus (umbrellas and tents are a must) and food easily eaten at the beach. There […]