2023 MWSF Annual Report

The MWSF 2023 Annual Report is now available! Dive into the 2023 MWSF Annual Report and uncover a wealth of insights. Discover past events, cutting-edge research updates, meet our dedicated officers, and more. Don’t miss this opportunity to deepen your understanding of our foundation’s journey. Read the report HERE

Rare Disease Day – February 29, 2024

Show your love! Support the Mowat-Wilson Syndrome Foundation. Donate Today! Download our frame, add your loved one photo, and share on Instagram or Facebook Stories. The instructions below show the step-by-step for Instagram, which is fairly similar to Facebook. Let us know if you have questions. 1. Save this image below to your phone. 2. […]

MWSF 2024 January/February Newsletter

The January/February 2024 MWSF  Newsletter is Here! Our January/February 2024 Newsletter is filled with great stories! Take a moment to read and enjoy! Discover a wealth of compelling stories that are sure to captivate your interest and warm your heart. In this edition, we shine a spotlight on the significance of Rare Disease Day, inviting […]

November/December 2023 MWSF Newsletter

The November/December 2023 MWSF  Newsletter is Here! Our November/December 2023 Newsletter is filled with great stories! Take a moment to read and enjoy!  

Giving Tuesday 2023 – Donate to MWSF!

We are weeks away from Giving Tuesday, November 28, 2023. It is the biggest day of the year for giving back! #Giving Tuesday. MWSF has a goal of raising $5,000 this year! Through past donations, the Mowat Wilson Syndrome Foundation has been able to create tools and resources to help families cope with this disease and […]

MWF Foundation Celebrates 10th Anniversary

On October 7th, 2023 the Mowat-Wilson Syndrome Foundation celebrated its 10th birthday. Our founding board was made up of 8 parents and grandparents of children with Mowat-Wilson Syndrome. Our mission was to enhance the lives of people affected by Mowat-Wilson Syndrome by providing family support, raising awareness, and supporting research and education. We held our […]

October 2023 Newsletter

The October Newsletter is Here! Our October 2023 Newsletter is loaded with great stories! Take a moment to read and enjoy!  

Run for MWS: Open to Everyone!

Registrations are now OPEN for our fantastic October fundraising event!  Get ready to run, walk, or stroll your way to making a BIG difference for the MWS Foundation! Lace up those sneakers or put on your comfiest walking shoes, because it’s time to hit the pavement for an incredible cause! Choose a date, and to […]

MWSF July-August 2023 Newsletter

The July-August Newsletter is Here! Our July-August 2023 Newsletter is loaded with great stories! Take a moment to read and enjoy!  

Ride for MWS – Team Bella – Ultra Niagara 500-Mile Challenge

FOR IMMEDIATE RELEASE We are thrilled to announce the upcoming Ride for Bella and Mowat-Wilson Syndrome: Ultra-Niagara 500, a 500-mile bike ride dedicated to raising awareness and funds for Mowat-Wilson Syndrome (MWS). Organized by Rodrigo Meireles, father of Bella, who was born with MWS, this incredible journey will take place from Niagara Falls to Brewster, […]