Giving Tuesday 2023 – Donate to MWSF!

We are weeks away from Giving Tuesday, November 28, 2023. It is the biggest day of the year for giving back! #Giving Tuesday. MWSF has a goal of raising $5,000 this year! Through past donations, the Mowat Wilson Syndrome Foundation has been able to create tools and resources to help families cope with this disease and […]

MWF Foundation Celebrates 10th Anniversary

On October 7th, 2023 the Mowat-Wilson Syndrome Foundation celebrated its 10th birthday. Our founding board was made up of 8 parents and grandparents of children with Mowat-Wilson Syndrome. Our mission was to enhance the lives of people affected by Mowat-Wilson Syndrome by providing family support, raising awareness, and supporting research and education. We held our […]

October 2023 Newsletter

The October Newsletter is Here! Our October 2023 Newsletter is loaded with great stories! Take a moment to read and enjoy!  

Run for MWS: Open to Everyone!

Registrations are now OPEN for our fantastic October fundraising event!  Get ready to run, walk, or stroll your way to making a BIG difference for the MWS Foundation! Lace up those sneakers or put on your comfiest walking shoes, because it’s time to hit the pavement for an incredible cause! Choose a date, and to […]

MWSF July-August 2023 Newsletter

The July-August Newsletter is Here! Our July-August 2023 Newsletter is loaded with great stories! Take a moment to read and enjoy!  

Ride for MWS – Team Bella – Ultra Niagara 500-Mile Challenge

FOR IMMEDIATE RELEASE We are thrilled to announce the upcoming Ride for Bella and Mowat-Wilson Syndrome: Ultra-Niagara 500, a 500-mile bike ride dedicated to raising awareness and funds for Mowat-Wilson Syndrome (MWS). Organized by Rodrigo Meireles, father of Bella, who was born with MWS, this incredible journey will take place from Niagara Falls to Brewster, […]

Meet Bella, the Ballerina

Bella the Ballerina originally published January 1, 2016 ~ ASHARMEDLIFE In 2016 A Sharmed Life! highlighted Bella the Ballerina. They gave us permission to replicate their article here. It has been seven years since Bella was in this particular performance but she continues to inspire us and hopefully you. Find your child’s passion and look […]

MWSF April 2023 Newsletter

The New Patient Registry is Here! Our April 2023 Newsletter is loaded with great stories! Take a moment to read and enjoy!  

MWS Family of the Month – Harper’s Story

By Harper’s mom Our daughter, Harper, is a perfect 7-year-old kid. She is happy, hilarious, smart, hardworking, kind, and stubborn. She loves her sister and tolerates our dog, she LOVES her friends and Roblox, and she has Mowat-Wilson Syndrome. My husband, Adam, and I were so excited to get married and start our family in […]

MWSF March 2023 Newsletter

Great Stories and the Most Expected Announcement! Our March 2023 newsletter is loaded with great stories! Take a moment to read and enjoy!