MWS Family of the Month – The Carter Family

TJ’s STORY No one could prepare us for the change that was coming to our lives when TJ was born or the journey that was ahead of us. It is not an easy path, but it is well worth traveling and has grown our faith and truly taught us about God’s love. TJ is our […]

Meet the Researcher – Zoom Webinar Series

Join us on Thursday, April 21, 2022 at 6pm Eastern time as we host researcher, Dr. Rebekah Charney. This event has been postponed due to illness – stay posted for updates on the new date/time. Dr. Charney is a developmental and stem cell biologist currently working as a postdoctoral research fellow at the University of […]

Life Hacks for MWS families

Released April 1, 2022 Tips for the Bathroom In the bathroom, put a basket of toys on the floor – if your child bends over, it helps them use the bathroom Give your child some water to drink in the bathroom to help them need to urinate Use a spray bottle with warm water or […]

Caregiving Corner

Released April 1, 2022 The MWSF Community Advisory Board would like to share some tips and resources for caregivers: Communication  Nonverbal does NOT mean that your child cannot communicate and that they don’t understand – you have to find a way to give them that communication – and there are many avenues and different ways […]

MWS Family of the Month – the Rodriguez Family

Life Hacks for MWS families

Released March 1, 2022 Travel Tips Take a travel bag with you on trips. Safeplace bedding.com provides safe solutions so your child does not fall off of a bed. You can strap this on to any size of mattress even air mattresses. The mission of Safeplace Bedding is to give the WHOLE family the joy […]

Caregiving Corner

Released March 1, 2022 The MWSF Community Advisory Board would like to share some tips and resources for caregivers: Counseling can help We go through rough phases when our children are in the hospital – we don’t realize how traumatic it can be on our lives and physical health. Sometimes you don’t really realize how […]

MWS Family of the Month – the Stegg Family

Life Hacks for MWS families

Released February 22, 2022 Keep a backpack handy (by the door) in case of emergencies. In the backpack keep emergency medications, snacks, extra clothes, diapers, and small toys. Purchase multiple copies of favorite toys and keep them in each room and the car – this will eliminate problems if a favorite toy is lost or […]

Caregiving Corner

Released February 22, 2022 The MWSF Community Advisory Board would like to share some age-based advice with our community: Infants It is important to enroll in Early Intervention Services as soon as possible Connect with all the different types of Medical Professionals as soon as possible to develop a responsive Care Team: Primary Care Physician, […]