New Donor Levels

New Donor Levels We would like to introduce our new levels of giving Everyone that joins our Sustaining Seas monthly giving program during our 2021 Giving Day Fundraiser will receive a special prize in the mail. They can also enter to win a $50 Amazon gift card. We will share more about this opportunity during […]

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Join us in November for our Annual Charity Golf Tournament!

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Caregiving Corner

Released August 1, 2021 One struggle that many caregivers have is that medical professionals don’t listen to them. This problem can occur often for families with a rare disease. It is important for caregivers to advocate for their loved one and for themselves – even though this can be a draining process. Here are some […]

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