Mowat-Wilson Syndrome Patient Portal

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The MWS Matrix Portal is available for MWS families only.

The first step is to request access. You will be asked to provide caregiver information and the name of your MWS patient. Then, within 24 hours, you will receive a response that provides access to the portal or an email address to respond to, if your request was denied.

The MWS Foundation in partnership with Across Healthcare have created a customized health records portal for Mowat-Wilson Syndrome (MWS) patients to help patients and caregivers easily capture, track, and share information related to medications, symptoms, activities, and electronic health records. The MWS Matris is available in English, Spanish, Italian and French.

The MWS Matrix Portal includes functions within the following categories:


Allows for keeping a log of all medications, dosages, and refill dates. Text and email alerts can be set up for medication administration and refill dates.

Symptoms and Activities

Allows patients and caregivers to customize any symptoms or activities they want to track such as seizure activity, doctor appointments, medication changes, or sleep patterns. A graph is then created of multiple activities and symptoms to look for possible correlations.


Allows creation of journals to easily keep a written narrative of things such as changes in eating, GI issues, physical therapy feedback, and doctor visits.


Allows uploading of documents so they are easily accessible and in one place.

Message Center

Allows for two-way communication with the MWS Foundation.

Resource Center

Allows the MWS Foundation to make important documents and forms easily accessible. An example might be a document explaining MWS for a new health care provider, therapist, or teacher.