Epilepsy & Seizures in Mowat-Wilson Syndrome March 7, 2019 – 8:00 pm EST Speaker: John Schreiber, MD Overview of seizures and epilepsy and how these manifest in MWS, with particular attention to neurological consequences and management.
SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]
2020 MWS International Family Conference June 25-27, 2020 – Houston, TX The MWS Foundation will host the 3rd International Family Conference on June 25-27, 2020 in Houston, Texas.
LOBS OF LOVE EVENT AT MILFORD INDOOR TENNIS TO BENEFIT THE MOWAT-WILSON SYNDROME FOUNDATION Milford, CT – A fun evening of tennis and prizes is on tap for September 29 at Milford Indoor Tennis (580 Bridgeport Ave.). The Lobs of Love Event will benefit the Mowat-Wilson Syndrome Foundation. Mowat-Wilson Syndrome is a rare but extremely serious […]
2018 Regional Events The Foundation hosted three great regional events in 2018. Regional events are informal events where the families get together in a relaxed and fun setting to exchange experiences and get to spend some time together.
All MWS families invited to a great night of music, friends and fun! The Mowat-Wilson Syndrome Foundation cordially invites friends, donors and anyone who loves good music to its fundraising concert to take place in Barre, VT on May 5th, 2018.
We had eight great workshops at the 2017 Conference in Washington DC. Here are the slides and the audios.Feel free to share!
Thank you to everyone who completed the Foundation survey to provide feedback for our 2017 conference in Washington, DC. Over half of the attending families responded with details of what they liked and what could be done better. We will keep all of your statements in mind as we prepare for future events. We asked […]
Jun 29 to July 01, 2017 – Washington D.C. Three days filled with lectures, workshops, Q&A sessions and activities for parents, individuals with Mowat-Wilson Syndrome and siblings. Guest speakers include Dr. David Mowat and Dr. Margaret Wilson among many other specialists that will speak on topics that affect most families like: Bowel Management, Mobility, Adaptive […]
October 15, 2016 – Seattle, WA The Medical Forum will be an informative program for families and medical students. The morning program will include updates from the doctors on the various studies that are being conducted on Mowat-Wilson Syndrome. Doctors Wilson and Adam will conduct a clinic in the afternoon for the medical students in […]
August 20, 2016 – Atlanta, GA 1:00 pm – 6:00 pm Location Al & Susan Triunfo’s place 901 Dogwood Trail, Tyrone, GA 30290 Join us for a fun filled day! Swimming pool with basketball hoop, putting green, corn hole, bocce ball and other games. BBQ served around 4 p.m. Hamburgers, hot dogs, sides & fixins! […]
August 21, 2016 – Camp Harkness – Waterford, CT 10:30 am – 3:00 pm The Mowat-Wilson Family Beach Day is an informal and relaxing day when families gather together to enjoy themselves and exchange experiences. Families must bring their own beach apparatus (umbrellas and tents are a must) and food easily eaten at the beach. There […]