Registrations for our fantastic October fundraising event is OPEN! Get ready to run, walk, or stroll to make a BIG difference for the MWS Foundation! Lace up those sneakers or wear your comfiest walking shoes, because it’s time to hit the pavement for an incredible cause! Choose a date, and to register to receive a […]
https://mowat-wilson.org/wp-content/uploads/2024/09/Logo-RunForMWS-rect.jpg54110304Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2024-09-02 08:25:382024-09-02 08:25:382024 Run For MWS: Join Us!
https://mowat-wilson.org/wp-content/uploads/2024/07/ultra-montreal-500-road.jpg108010804Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2024-07-31 15:14:072024-09-02 06:06:19Learn about the Ultra Montreal 500 Challenge
Show your love! Support the Mowat-Wilson Syndrome Foundation. Donate Today! Download our frame, add your loved one photo, and share on Instagram or Facebook Stories. The instructions below show the step-by-step for Instagram, which is fairly similar to Facebook. Let us know if you have questions. 1. Save this image below to your phone. 2. […]
https://mowat-wilson.org/wp-content/uploads/2024/02/Rare-Diesease-Day-2024-square.jpg108010804Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2024-02-22 07:05:582024-02-26 16:38:14Rare Disease Day – February 29, 2024
Registrations are now OPEN for our fantastic October fundraising event! Get ready to run, walk, or stroll your way to making a BIG difference for the MWS Foundation! Lace up those sneakers or put on your comfiest walking shoes, because it’s time to hit the pavement for an incredible cause! Choose a date, and to […]
https://mowat-wilson.org/wp-content/uploads/2023/09/Logo-RunForMWS-rect.jpg54110304Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2023-09-17 18:32:412023-10-09 04:50:41Run for MWS: Open to Everyone!
FOR IMMEDIATE RELEASE We are thrilled to announce the upcoming Ride for Bella and Mowat-Wilson Syndrome: Ultra-Niagara 500, a 500-mile bike ride dedicated to raising awareness and funds for Mowat-Wilson Syndrome (MWS). Organized by Rodrigo Meireles, father of Bella, who was born with MWS, this incredible journey will take place from Niagara Falls to Brewster, […]
Run For MWS Annual Awareness & Virtual Fundraising Event Hello MWS Families and Friends! Join us on our Annual Awareness & Virtual Fundraiser event – Run for MWS! Here are the steps: Decide on the event type – single runner, a group run, a race in your town, a fun run around the block, or […]
https://mowat-wilson.org/wp-content/uploads/2022/09/RunForMWS-FB-2.jpg107919204Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2022-09-08 07:52:402022-11-01 07:38:072022 Run For MWS – Register Today!
Join us on Thursday, April 21, 2022 at 6pm Eastern time as we host researcher, Dr. Rebekah Charney. This event has been postponed due to illness – stay posted for updates on the new date/time. Dr. Charney is a developmental and stem cell biologist currently working as a postdoctoral research fellow at the University of […]
GivingTuesday is a global movement designed unleash the power of radical generosity. GivingTuesday was created in 2012 as a simple idea: a day that encourages people to do good. Since then, it has grown into a year-round global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity. Join the movement […]
https://mowat-wilson.org/wp-content/uploads/2021/11/2021-Giving-Tuesday-small-square-scaled.jpg20272560Marcia Smithhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.pngMarcia Smith2021-11-01 13:14:322021-11-01 13:24:38Save the Date for our 2021 Giving Day Fundraiser on Tuesday, November 30
Join us on Thursday, October 7th, 2021 at 11 am Eastern time as we host researcher, Sumantra Chatterjee, a Research Assistant Professor at the Centre for Human Genetics and Genomics in NYU Grossman School of Medicine, New York. Sumantra has trained both as a developmental biologist and a human geneticist studying complex congenital diseases. His work […]
Run For MWS Virtual Fundraiser & Awareness We would like to inspire families around the world to run for MWS as a form of raising awareness and fundraising for the MWS Foundation. Here are the steps: Decide on the event type – single runner, a group run, a race in your town… Pick a date […]
https://mowat-wilson.org/wp-content/uploads/2021/08/RunForMWS-square-2.jpg255025404Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2021-08-21 19:03:092021-11-01 09:18:082021 Run For MWS – Register Today!
Virtual Conference Open to the Entire World OCT 10 | OCT 24 | NOV 7 | NOV 21 Our Houston conference may have been cancelled but we are happy to announce that we are presenting the speakers on a virtual platform where we can still see all families and interact while we listen to the […]
SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]
Epilepsy & Seizures in Mowat-Wilson Syndrome March 7, 2019 – 8:00 pm EST Speaker: John Schreiber, MD Overview of seizures and epilepsy and how these manifest in MWS, with particular attention to neurological consequences and management.
SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]
2020 MWS International Family Conference June 25-27, 2020 – Houston, TX The MWS Foundation will host the 3rd International Family Conference on June 25-27, 2020 in Houston, Texas.
https://mowat-wilson.org/wp-content/uploads/2018/12/MWS-2020-Conf-Logo-Blue-1200.jpg93012004Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2018-12-20 13:18:202018-12-20 14:28:32MWS Foundation Announces 2020 Family Conference
LOBS OF LOVE EVENT AT MILFORD INDOOR TENNIS TO BENEFIT THE MOWAT-WILSON SYNDROME FOUNDATION Milford, CT – A fun evening of tennis and prizes is on tap for September 29 at Milford Indoor Tennis (580 Bridgeport Ave.). The Lobs of Love Event will benefit the Mowat-Wilson Syndrome Foundation. Mowat-Wilson Syndrome is a rare but extremely serious […]
https://mowat-wilson.org/wp-content/uploads/2018/08/LobsforLove-square-1.png102910294Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2018-08-28 06:22:462020-09-10 10:27:52Lobs of Love Fundraiser
2018 Regional Events The Foundation hosted three great regional events in 2018. Regional events are informal events where the families get together in a relaxed and fun setting to exchange experiences and get to spend some time together.
All MWS families invited to a great night of music, friends and fun! The Mowat-Wilson Syndrome Foundation cordially invites friends, donors and anyone who loves good music to its fundraising concert to take place in Barre, VT on May 5th, 2018.
https://mowat-wilson.org/wp-content/uploads/2018/02/1964-theTribute-mws-1.jpg82215354Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2018-02-15 18:55:572020-09-10 10:27:531964.. The Tribute Concert to Benefit the Mowat-Wilson Syndrome Foundation
https://mowat-wilson.org/wp-content/uploads/2017/01/IMG_7181.jpg138213824Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2017-08-15 13:26:292017-08-15 13:29:302017 Conference Workshops Now Available on YouTube
Thank you to everyone who completed the Foundation survey to provide feedback for our 2017 conference in Washington, DC. Over half of the attending families responded with details of what they liked and what could be done better. We will keep all of your statements in mind as we prepare for future events. We asked […]
https://mowat-wilson.org/wp-content/uploads/2017/01/20170630_170552-scaled.jpg144025604Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2017-08-05 05:38:412017-08-05 05:42:392017 International Family Conference Feedback Survey
Jun 29 to July 01, 2017 – Washington D.C. Three days filled with lectures, workshops, Q&A sessions and activities for parents, individuals with Mowat-Wilson Syndrome and siblings. Guest speakers include Dr. David Mowat and Dr. Margaret Wilson among many other specialists that will speak on topics that affect most families like: Bowel Management, Mobility, Adaptive […]
https://mowat-wilson.org/wp-content/uploads/2016/09/2017-MWS-IntFC-square.png6366364Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2016-11-04 16:39:532017-01-10 14:51:342017 International Family Conference
October 15, 2016 – Seattle, WA The Medical Forum will be an informative program for families and medical students. The morning program will include updates from the doctors on the various studies that are being conducted on Mowat-Wilson Syndrome. Doctors Wilson and Adam will conduct a clinic in the afternoon for the medical students in […]
https://mowat-wilson.org/wp-content/uploads/2016/08/2016-MWS-NWMedicalForum.png6366364Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2016-06-18 02:45:082016-10-15 18:13:452016 Seattle Medical Forum
August 20, 2016 – Atlanta, GA 1:00 pm – 6:00 pm Location Al & Susan Triunfo’s place 901 Dogwood Trail, Tyrone, GA 30290 Join us for a fun filled day! Swimming pool with basketball hoop, putting green, corn hole, bocce ball and other games. BBQ served around 4 p.m. Hamburgers, hot dogs, sides & fixins! […]
https://mowat-wilson.org/wp-content/uploads/2016/08/2016-MWS-SOPoolParty.png6366364Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2016-05-18 02:13:392016-10-12 00:17:312016 Atlanta Family Pool Party & BBQ
August 21, 2016 – Camp Harkness – Waterford, CT 10:30 am – 3:00 pm The Mowat-Wilson Family Beach Day is an informal and relaxing day when families gather together to enjoy themselves and exchange experiences. Families must bring their own beach apparatus (umbrellas and tents are a must) and food easily eaten at the beach. There […]
https://mowat-wilson.org/wp-content/uploads/2016/08/2016-MWS-NEBeachDay.png6366364Foundationhttps://mowat-wilson.org/wp-content/uploads/2016/07/MWS-logo-final-340-1.png4Foundation2016-04-18 02:39:282016-10-12 00:17:392016 Annual Family Beach Day – CT
2024 Run For MWS: Join Us!
Registrations for our fantastic October fundraising event is OPEN! Get ready to run, walk, or stroll to make a BIG difference for the MWS Foundation! Lace up those sneakers or wear your comfiest walking shoes, because it’s time to hit the pavement for an incredible cause! Choose a date, and to register to receive a […]
Learn about the Ultra Montreal 500 Challenge
RIDE FOR MWS Learn more about this amazing bike ride to support the Mowat-Wilson Foundation. LEARN MORE
Rare Disease Day – February 29, 2024
Show your love! Support the Mowat-Wilson Syndrome Foundation. Donate Today! Download our frame, add your loved one photo, and share on Instagram or Facebook Stories. The instructions below show the step-by-step for Instagram, which is fairly similar to Facebook. Let us know if you have questions. 1. Save this image below to your phone. 2. […]
Run for MWS: Open to Everyone!
Registrations are now OPEN for our fantastic October fundraising event! Get ready to run, walk, or stroll your way to making a BIG difference for the MWS Foundation! Lace up those sneakers or put on your comfiest walking shoes, because it’s time to hit the pavement for an incredible cause! Choose a date, and to […]
Ride for MWS – Team Bella – Ultra Niagara 500-Mile Challenge
FOR IMMEDIATE RELEASE We are thrilled to announce the upcoming Ride for Bella and Mowat-Wilson Syndrome: Ultra-Niagara 500, a 500-mile bike ride dedicated to raising awareness and funds for Mowat-Wilson Syndrome (MWS). Organized by Rodrigo Meireles, father of Bella, who was born with MWS, this incredible journey will take place from Niagara Falls to Brewster, […]
2022 Run For MWS – Register Today!
Run For MWS Annual Awareness & Virtual Fundraising Event Hello MWS Families and Friends! Join us on our Annual Awareness & Virtual Fundraiser event – Run for MWS! Here are the steps: Decide on the event type – single runner, a group run, a race in your town, a fun run around the block, or […]
Meet the Researcher – Zoom Webinar Series
Join us on Thursday, April 21, 2022 at 6pm Eastern time as we host researcher, Dr. Rebekah Charney. This event has been postponed due to illness – stay posted for updates on the new date/time. Dr. Charney is a developmental and stem cell biologist currently working as a postdoctoral research fellow at the University of […]
Save the Date for our 2021 Giving Day Fundraiser on Tuesday, November 30
GivingTuesday is a global movement designed unleash the power of radical generosity. GivingTuesday was created in 2012 as a simple idea: a day that encourages people to do good. Since then, it has grown into a year-round global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity. Join the movement […]
Meet the Researcher – Zoom Webinar Series
Join us on Thursday, October 7th, 2021 at 11 am Eastern time as we host researcher, Sumantra Chatterjee, a Research Assistant Professor at the Centre for Human Genetics and Genomics in NYU Grossman School of Medicine, New York. Sumantra has trained both as a developmental biologist and a human geneticist studying complex congenital diseases. His work […]
2021 Run For MWS – Register Today!
Run For MWS Virtual Fundraiser & Awareness We would like to inspire families around the world to run for MWS as a form of raising awareness and fundraising for the MWS Foundation. Here are the steps: Decide on the event type – single runner, a group run, a race in your town… Pick a date […]
2020 Mowat-Wilson Syndrome Virtual Conference
Virtual Conference Open to the Entire World OCT 10 | OCT 24 | NOV 7 | NOV 21 Our Houston conference may have been cancelled but we are happy to announce that we are presenting the speakers on a virtual platform where we can still see all families and interact while we listen to the […]
2019 MWS Regional Events
SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]
Webinar: Epilepsy & Seizures – Watch Now!
Epilepsy & Seizures in Mowat-Wilson Syndrome March 7, 2019 – 8:00 pm EST Speaker: John Schreiber, MD Overview of seizures and epilepsy and how these manifest in MWS, with particular attention to neurological consequences and management.
2019 MWS Regional Events
SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]
MWS Foundation Announces 2020 Family Conference
2020 MWS International Family Conference June 25-27, 2020 – Houston, TX The MWS Foundation will host the 3rd International Family Conference on June 25-27, 2020 in Houston, Texas.
Lobs of Love Fundraiser
LOBS OF LOVE EVENT AT MILFORD INDOOR TENNIS TO BENEFIT THE MOWAT-WILSON SYNDROME FOUNDATION Milford, CT – A fun evening of tennis and prizes is on tap for September 29 at Milford Indoor Tennis (580 Bridgeport Ave.). The Lobs of Love Event will benefit the Mowat-Wilson Syndrome Foundation. Mowat-Wilson Syndrome is a rare but extremely serious […]
2018 MWS Regional Events
2018 Regional Events The Foundation hosted three great regional events in 2018. Regional events are informal events where the families get together in a relaxed and fun setting to exchange experiences and get to spend some time together.
1964.. The Tribute Concert to Benefit the Mowat-Wilson Syndrome Foundation
All MWS families invited to a great night of music, friends and fun! The Mowat-Wilson Syndrome Foundation cordially invites friends, donors and anyone who loves good music to its fundraising concert to take place in Barre, VT on May 5th, 2018.
2017 Conference Workshops Now Available on YouTube
We had eight great workshops at the 2017 Conference in Washington DC. Here are the slides and the audios.Feel free to share!
2017 International Family Conference Feedback Survey
Thank you to everyone who completed the Foundation survey to provide feedback for our 2017 conference in Washington, DC. Over half of the attending families responded with details of what they liked and what could be done better. We will keep all of your statements in mind as we prepare for future events. We asked […]
2017 International Family Conference
Jun 29 to July 01, 2017 – Washington D.C. Three days filled with lectures, workshops, Q&A sessions and activities for parents, individuals with Mowat-Wilson Syndrome and siblings. Guest speakers include Dr. David Mowat and Dr. Margaret Wilson among many other specialists that will speak on topics that affect most families like: Bowel Management, Mobility, Adaptive […]
2016 Seattle Medical Forum
October 15, 2016 – Seattle, WA The Medical Forum will be an informative program for families and medical students. The morning program will include updates from the doctors on the various studies that are being conducted on Mowat-Wilson Syndrome. Doctors Wilson and Adam will conduct a clinic in the afternoon for the medical students in […]
2016 Atlanta Family Pool Party & BBQ
August 20, 2016 – Atlanta, GA 1:00 pm – 6:00 pm Location Al & Susan Triunfo’s place 901 Dogwood Trail, Tyrone, GA 30290 Join us for a fun filled day! Swimming pool with basketball hoop, putting green, corn hole, bocce ball and other games. BBQ served around 4 p.m. Hamburgers, hot dogs, sides & fixins! […]
2016 Annual Family Beach Day – CT
August 21, 2016 – Camp Harkness – Waterford, CT 10:30 am – 3:00 pm The Mowat-Wilson Family Beach Day is an informal and relaxing day when families gather together to enjoy themselves and exchange experiences. Families must bring their own beach apparatus (umbrellas and tents are a must) and food easily eaten at the beach. There […]