An Ordinary Day: Kids with Rare Genetic Conditions
Photographer Highlights Kids With Rare Genetic Conditions, Including Mowat-Wilson Syndrome, In Stunning Photos
An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost. 1 in 10 Americans are living with a rare genetic condition. The conditions that rule the lives of these families are often overlooked by society, but for millions of people it is a matter of foremost priority. This book sheds an important and compassionate light on these existences.
We are honored to have Jonathan, who has Mowat-Wilson Syndrome, featured in the book.
Hardcover: 176 pages
Publisher: powerHouse Books (October 17, 2017)