Posts

Rare Disease Day – February 29, 2024

Show your love! Support the Mowat-Wilson Syndrome Foundation. Donate Today! Download our frame, add your loved one photo, and share on Instagram or Facebook Stories. The instructions below show the step-by-step for Instagram, which is fairly similar to Facebook. Let us know if you have questions. 1. Save this image below to your phone. 2. […]

Run for MWS: Open to Everyone!

Registrations are now OPEN for our fantastic October fundraising event!  Get ready to run, walk, or stroll your way to making a BIG difference for the MWS Foundation! Lace up those sneakers or put on your comfiest walking shoes, because it’s time to hit the pavement for an incredible cause! Choose a date, and to […]

Ride for MWS – Team Bella – Ultra Niagara 500-Mile Challenge

FOR IMMEDIATE RELEASE We are thrilled to announce the upcoming Ride for Bella and Mowat-Wilson Syndrome: Ultra-Niagara 500, a 500-mile bike ride dedicated to raising awareness and funds for Mowat-Wilson Syndrome (MWS). Organized by Rodrigo Meireles, father of Bella, who was born with MWS, this incredible journey will take place from Niagara Falls to Brewster, […]

2022 Run For MWS – Register Today!

Run For MWS Annual Awareness & Virtual Fundraising Event Hello MWS Families and Friends! Join us on our Annual Awareness & Virtual Fundraiser event – Run for MWS!  Here are the steps: Decide on the event type – single runner, a group run, a race in your town, a fun run around the block, or […]

Meet the MWSF Community Advisory Board

MWS Community Advisory Board Established. Members Selected. The MWS Foundation recently established our first Community Advisory Board (CAB). The idea behind the CAB is to put in place a more efficient process to gain input from the MWS community. We have selected 14 members (10 U.S. and 4 International) from the MWS community to begin […]

2019 Giving Tuesday

Set Up a Giving Tuesday Fundraiser We Can Do More Together! GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. Facebook has announced a $7M matching for donations received on Tuesday, December 3rd  on a first come, first serve basis. You can help raising […]

2019 MWS Regional Events

SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]

Webinar: Epilepsy & Seizures – Watch Now!

Epilepsy & Seizures in Mowat-Wilson Syndrome March 7, 2019 – 8:00 pm EST Speaker: John Schreiber, MD Overview of seizures and epilepsy and how these manifest in MWS, with particular attention to neurological consequences and management.

2019 MWS Regional Events

SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]

Lobs of Love Fundraiser

LOBS OF LOVE EVENT AT MILFORD INDOOR TENNIS TO BENEFIT THE MOWAT-WILSON SYNDROME FOUNDATION Milford, CT – A fun evening of tennis and prizes is on tap for September 29 at Milford Indoor Tennis (580 Bridgeport Ave.). The Lobs of Love Event will benefit the Mowat-Wilson Syndrome Foundation. Mowat-Wilson Syndrome is a rare but extremely serious […]