Posts

2022 Run For MWS – Register Today!

Run For MWS Annual Awareness & Virtual Fundraising Event Hello MWS Families and Friends! Join us on our Annual Awareness & Virtual Fundraiser event – Run for MWS!  Here are the steps: Decide on the event type – single runner, a group run, a race in your town, a fun run around the block, or […]

Meet the MWSF Community Advisory Board

MWS Community Advisory Board Established. Members Selected. The MWS Foundation recently established our first Community Advisory Board (CAB). The idea behind the CAB is to put in place a more efficient process to gain input from the MWS community. We have selected 14 members (10 U.S. and 4 International) from the MWS community to begin […]

MWSF Store Now Open!

Support the MWS Foundation and Raise Awareness! Great Gifts for Families, Caregivers, Teachers and Therapists! The Mowat Wilson Syndrome Foundation is proud to announce the grand opening of the MWS Store featuring many options of products. Looking for a gift? Please support the Foundation by shopping at our store. Our initial inventory includes: T-shirts Polo […]

2019 Giving Tuesday

Set Up a Giving Tuesday Fundraiser We Can Do More Together! GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world. Facebook has announced a $7M matching for donations received on Tuesday, December 3rd  on a first come, first serve basis. You can help raising […]

2019 MWS Regional Events

SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]

Webinar: Epilepsy & Seizures – Watch Now!

Epilepsy & Seizures in Mowat-Wilson Syndrome March 7, 2019 – 8:00 pm EST Speaker: John Schreiber, MD Overview of seizures and epilepsy and how these manifest in MWS, with particular attention to neurological consequences and management.

2019 MWS Regional Events

SIGN UP FOR AN EVENT NEAR YOU! One of the Mowat-Wilson Syndrome Foundation’s mission is to provide support to the families. Regional events are organized for families to get together to meet, greet and exchange experiences. We have found that these events are extremely valuable for our community. We would love to extend these regional get togethers to all […]

Lobs of Love Fundraiser

LOBS OF LOVE EVENT AT MILFORD INDOOR TENNIS TO BENEFIT THE MOWAT-WILSON SYNDROME FOUNDATION Milford, CT – A fun evening of tennis and prizes is on tap for September 29 at Milford Indoor Tennis (580 Bridgeport Ave.). The Lobs of Love Event will benefit the Mowat-Wilson Syndrome Foundation. Mowat-Wilson Syndrome is a rare but extremely serious […]

2018 MWS Regional Events

2018 Regional Events The Foundation hosted three great regional events in 2018. Regional events are informal events where the families get together in a relaxed and fun setting to exchange experiences and get to spend some time together.

1964.. The Tribute Concert to Benefit the Mowat-Wilson Syndrome Foundation

All MWS families invited to a great night of music, friends and fun! The Mowat-Wilson Syndrome Foundation cordially invites friends, donors and anyone who loves good music to its fundraising concert to take place in Barre, VT on May 5th, 2018.