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November/December 2023 MWSF Newsletter

The November/December 2023 MWSF  Newsletter is Here! Our November/December 2023 Newsletter is filled with great stories! Take a moment to read and enjoy!  

MWF Foundation Celebrates 10th Anniversary

On October 7th, 2023 the Mowat-Wilson Syndrome Foundation celebrated its 10th birthday. Our founding board was made up of 8 parents and grandparents of children with Mowat-Wilson Syndrome. Our mission was to enhance the lives of people affected by Mowat-Wilson Syndrome by providing family support, raising awareness, and supporting research and education. We held our […]

October 2023 Newsletter

The October Newsletter is Here! Our October 2023 Newsletter is loaded with great stories! Take a moment to read and enjoy!  

MWSF July-August 2023 Newsletter

The July-August Newsletter is Here! Our July-August 2023 Newsletter is loaded with great stories! Take a moment to read and enjoy!  

MWSF April 2023 Newsletter

The New Patient Registry is Here! Our April 2023 Newsletter is loaded with great stories! Take a moment to read and enjoy!  

MWSF March 2023 Newsletter

Great Stories and the Most Expected Announcement! Our March 2023 newsletter is loaded with great stories! Take a moment to read and enjoy!  

February 28th – 2023 Rare Disease Day

February 28th Show Your Rare and Fundraise! LEARN MORE  

Important MWS Research Seeks Volunteers

Children’s National Research on ESES in MWS and its Impact on Development The purpose of the research is to collect electroencephalogram (EEG) recordings, developmental assessments and information such as seizure history, treatment, imaging, and medical records from people with genetically-confirmed Mowat Wilson syndrome (MWS). We hope to gain a better understanding of the occurrence of […]

MWSF January 2023 Newsletter

Happy New Year! Our January 2023 newsletter is loaded with great news! Take a moment to read And enjoy!  

MWSF November 2022 Newsletter

Our newsletter is loaded with great news! Take a moment to read And enjoy!