Posts

New Survey to Capture MWS Growth Data

As of March 1, 2018, the Mowat-Wilson Syndrome registry has over 133 participants involved at varying levels with the three current surveys. With the launch of the Growth Data survey we hope to be able to provide the valuable information necessary for the development of Mowat-Wilson Syndrome specific growth charts. Here are some comments from Dr. […]

Read more

Mowat-Wilson Syndrome Patient Registry One Year Anniversary

Read more

Mowat-Wilson Syndrome Patient Registry Update – February 2017

The Mowat-Wilson Syndrome Foundation is pleased to report on the significant progress being made with the Mowat-Wilson Syndrome Patient Registry.  The registry was launched back in November, 2016.  Here is what Dr. Margaret Adam said at the time. “As is true for many rare genetic conditions, our ability to collect clinically relevant information that can […]

Read more